Comments for http://www.kissmyals.com/kissmyals-blog.html Mon, 06 Dec 2010 18:09:42 -0500 http://wordpress.org/?v=2.8.6 hourly 1 Comment on What is it to be alive? by Zech G. #comment-144 Zech G. Mon, 06 Dec 2010 18:09:42 +0000 #comment-144 I too have really had an "inquiry" into this subject of what it is to be alive and purpose. So, I know that I will one day return home to my creator, God. And if I was sent to Earth by my creator, it was for my creator that I was sent here. All to often I think I begin to believe that my own purpose from moment to moment is really worth anything. I've given my purpose over to God, thus taking my own selfishness out of the picture. I will always have moments of stupidity where I start to convince myself that I have any sort of meaning beyond God's purpose for my life. Or that I AM the one in control, because as we all know, we really aren't in control of anything. If we look back at everything that we've "controlled" at one time we learn that control can be taken away at anytime. When I rely on the Lord for what His purpose for my life is no matter the situation, it's no longer my call as to what living life is all about or what's acceptable to be called living. It's just my job to live a life that fulfills His purpose for me. James 1 1-7 2 Consider it pure joy, my brothers and sisters,[a] whenever you face trials of many kinds, 3 because you know that the testing of your faith produces perseverance. 4 Let perseverance finish its work so that you may be mature and complete, not lacking anything. 5 If any of you lacks wisdom, you should ask God, who gives generously to all without finding fault, and it will be given to you. 6 But when you ask, you must believe and not doubt, because the one who doubts is like a wave of the sea, blown and tossed by the wind. 7 That person should not expect to receive anything from the Lord. 8 Such a person is double-minded and unstable in all they do. When I am upset or sorrowed, it comes from the thought that my own desire or will may go unfulfilled. Perhaps it's the thought that what I had will be lost. However, when my will is His, I can rejoice in my loss for the greater of His kingdom and my faith is promised to bring me home! I too have really had an “inquiry” into this subject of what it is to be alive and purpose.

So, I know that I will one day return home to my creator, God. And if I was sent to Earth by my creator, it was for my creator that I was sent here. All to often I think I begin to believe that my own purpose from moment to moment is really worth anything. I’ve given my purpose over to God, thus taking my own selfishness out of the picture. I will always have moments of stupidity where I start to convince myself that I have any sort of meaning beyond God’s purpose for my life. Or that I AM the one in control, because as we all know, we really aren’t in control of anything. If we look back at everything that we’ve “controlled” at one time we learn that control can be taken away at anytime.

When I rely on the Lord for what His purpose for my life is no matter the situation, it’s no longer my call as to what living life is all about or what’s acceptable to be called living. It’s just my job to live a life that fulfills His purpose for me.

James 1 1-7
2 Consider it pure joy, my brothers and sisters,[a] whenever you face trials of many kinds, 3 because you know that the testing of your faith produces perseverance. 4 Let perseverance finish its work so that you may be mature and complete, not lacking anything. 5 If any of you lacks wisdom, you should ask God, who gives generously to all without finding fault, and it will be given to you. 6 But when you ask, you must believe and not doubt, because the one who doubts is like a wave of the sea, blown and tossed by the wind. 7 That person should not expect to receive anything from the Lord. 8 Such a person is double-minded and unstable in all they do.

When I am upset or sorrowed, it comes from the thought that my own desire or will may go unfulfilled. Perhaps it’s the thought that what I had will be lost. However, when my will is His, I can rejoice in my loss for the greater of His kingdom and my faith is promised to bring me home!

]]> Comment on I saw a play that changed my life… by admin #comment-143 admin Thu, 17 Jun 2010 02:00:23 +0000 #comment-143 I will be checking this out! I will be checking this out!

]]> Comment on First Annual Kiss My ALS Fundraiser by Andrea B. #comment-129 Andrea B. Sat, 26 Dec 2009 18:03:06 +0000 #comment-129 Hi Anne! Mark and I will see you on 2/10/2010. My brother-in-law, Paul now knows about the KissMyALS website and it brings relief, albeit sadness too, to hear from a dear friend of mine who is helping others with ALS cope (and sometimes not cope)with the day-to-day life of living with ALS. We miss my father-in-law very much. He would have loved you and your sense of humor. I believe that humor and a spirit like yours will keep your chin up, even when your body is not agreeing with your mind. Please call me if you need anything. I will be there for you, in a New York minute!!! XOXO Andrea Hi Anne!

Mark and I will see you on 2/10/2010. My brother-in-law, Paul now knows about the KissMyALS website and it brings relief, albeit sadness too, to hear from a dear friend of mine who is helping others with ALS cope (and sometimes not cope)with the day-to-day life of living with ALS. We miss my father-in-law very much. He would have loved you and your sense of humor. I believe that humor and a spirit like yours will keep your chin up, even when your body is not agreeing with your mind. Please call me if you need anything. I will be there for you, in a New York minute!!! XOXO Andrea

]]> Comment on Alternative therapies that make a difference: by Zecharia #comment-109 Zecharia Sat, 26 Dec 2009 06:47:02 +0000 #comment-109 What are you doing up so late young woman! It's 12:16am when you posted this!? lol... Have a good night Anne Marie! Hope your Christmas was great! What are you doing up so late young woman! It’s 12:16am when you posted this!? lol… Have a good night Anne Marie! Hope your Christmas was great!

]]> Comment on First Annual Kiss My ALS Fundraiser by DanaG #comment-66 DanaG Wed, 23 Dec 2009 05:06:48 +0000 #comment-66 I am grateful you have this blog and post your thoughts here. Very inspiring, Ms Anne Marie S.! I posted your url on facebook and I can't wait hear more about the fundraiser. All the best. Happy holidays! I am grateful you have this blog and post your thoughts here. Very inspiring, Ms Anne Marie S.! I posted your url on facebook and I can’t wait hear more about the fundraiser. All the best. Happy holidays!

]]> Comment on A feeding tube, really? This is my idea of hell. by dlcja5 #comment-65 dlcja5 Mon, 21 Dec 2009 08:02:02 +0000 #comment-65 Found You! Here's a copy of the text I sent you earlier this week, I hope it helps! I have a condition called sarcoidosis ( you can look it up if you like) which causes me fatigue, (ocasionally)slightly slurred speech, trouble breathing (because of a buildup of white blood cells in my lungs), aching legs, joints, feet, etc. I use QI GONG ( I hope you Do look that up) to regulate my condition. It allows me to function every day WITHOUT the doctor prescribed drugs (PREDNEZONE), and with more energy and peace in my life. 'Qi Gong for beginners' by Stanley Wilson is a ten dollar book you can pick up on amazon or at borders that will take you through a series of EASY stretches and breathing techniques. I chose to share this particular book, because the descriptions are very clear with easy to follow photos. Cheaper than a doctor's visit anyway... Damon Storm Found You! Here’s a copy of the text I sent you earlier this week, I hope it helps!
I have a condition called sarcoidosis ( you can look it up if you like) which causes me fatigue, (ocasionally)slightly slurred speech, trouble breathing (because of a buildup of white blood cells in my lungs), aching legs, joints, feet, etc. I use QI GONG ( I hope you Do look that up) to regulate my condition. It allows me to function every day WITHOUT the doctor prescribed drugs (PREDNEZONE), and with more energy and peace in my life. ‘Qi Gong for beginners’ by Stanley Wilson is a ten dollar book you can pick up on amazon or at borders that will take you through a series of EASY stretches and breathing techniques. I chose to share this particular book, because the descriptions are very clear with easy to follow photos. Cheaper than a doctor’s visit anyway…
Damon Storm

]]> Comment on First Annual Kiss My ALS Fundraiser by Seth #comment-64 Seth Thu, 17 Dec 2009 01:24:49 +0000 #comment-64 Anne, you are one of my new Heros! I really appreciate your spirit and strength. I'm sharing it with all my family members. If you can get a "share" link on your page, I will send it throughout Facebook as well. Keep up the great work and your great spirit! It's inspirational to others. Happy Holidays! Seth Anne, you are one of my new Heros! I really appreciate your spirit and strength. I’m sharing it with all my family members.

If you can get a “share” link on your page, I will send it throughout Facebook as well.

Keep up the great work and your great spirit! It’s inspirational to others. Happy Holidays!

Seth

]]> Comment on A feeding tube, really? This is my idea of hell. by Linda #comment-63 Linda Wed, 16 Dec 2009 20:46:57 +0000 #comment-63 Marcie's Journey With ALS - is the name of my blog ! Marcie is my daughter - she will tell you the best thing she ever did was to get a feeding tube called a PEG - in the summer of 2004 - the year before that she only ate what she could drink with a straw -I made her all sorts of drinks in the blender using fresh and rew vegetables- - that was 5 and almost 1/2 years ago when she got her PEG - Please go to my blog and read about my daughter - read in the April or May of 8 - where you can read about her Before ALS and a littlt into this disease Marcie is living with ALS for almost 16 years next month - being DX with she was only 23 - she is 39 now - living at home - I and her Dad care for her - she is very independent in her room - she has an Eye Gaze computer that reads her eyes -you can read about this on my blog also - she is even on there web site - and she works for a law firm using her computer -she is a very productive person so Never Give Up - even knowing you have ALS contact me if you like - I can tell you more about the feeding tube if you would like me to Linda Gibson - Arlington, TX http://linda-frances.blogspot.com Marcie’s Journey With ALS – is the name of my blog !

Marcie is my daughter – she will tell you the best thing she ever did was to get a feeding tube called a PEG – in the summer of 2004 – the year before that she only ate what she could drink with a straw -I made her all sorts of drinks in the blender using fresh and rew vegetables- – that was 5 and almost 1/2 years ago when she got her PEG –

Please go to my blog and read about my daughter – read in the April or May of 8 – where you can read about her Before ALS and a littlt into this disease

Marcie is living with ALS for almost 16 years next month – being DX with she was only 23 – she is 39 now – living at home – I and her Dad care for her – she is very independent in her room – she has an Eye Gaze computer that reads her eyes -you can read about this on my blog also – she is even on there web site – and she works for a law firm using her computer -she is a very productive person

so Never Give Up – even knowing you have ALS

contact me if you like – I can tell you more about the feeding tube if you would like me to

Linda Gibson – Arlington, TX
http://linda-frances.blogspot.com

]]> Comment on A feeding tube, really? This is my idea of hell. by Beth Preis #comment-62 Beth Preis Wed, 16 Dec 2009 20:05:20 +0000 #comment-62 Dear Ms. Schlekeway, I represent Northbrook/Glenview School District 30 in Northbrook. I read about you in the Tribune on December 14. You are a true inspiration. Our school holds the Lew Blond Memorial 5K Run/Walk every spring, in honor of a teacher of ours who passed away from ALS nine years ago. This year we will hold the 10th annual Lew Blond Run/Walk at 8 AM on May 22 at Maple School, Northbrook. I saw that you are having a fundraiser in February. I would be happy to promote it on our Lew Blond Run website, which can be accessed at www.district30.org. Would you consider a reciprocal arrangement? We would love to invite you to attend our event in May. It would be an honor to introduce you to the 750 participants that usually show up. I look forward to hearing from you... Dear Ms. Schlekeway,
I represent Northbrook/Glenview School District 30 in Northbrook. I read about you in the Tribune on December 14. You are a true inspiration. Our school holds the Lew Blond Memorial 5K Run/Walk every spring, in honor of a teacher of ours who passed away from ALS nine years ago. This year we will hold the 10th annual Lew Blond Run/Walk at 8 AM on May 22 at Maple School, Northbrook. I saw that you are having a fundraiser in February. I would be happy to promote it on our Lew Blond Run website, which can be accessed at http://www.district30.org. Would you consider a reciprocal arrangement? We would love to invite you to attend our event in May. It would be an honor to introduce you to the 750 participants that usually show up.
I look forward to hearing from you…

]]> Comment on A feeding tube, really? This is my idea of hell. by toadfish99 #comment-61 toadfish99 Wed, 16 Dec 2009 15:45:33 +0000 #comment-61 Anne Marie, In the moments before I picked up the trib on Sunday I was bithcing and moaning about my financial woes...............i'm glad i read your story. I have to remember to stop being so self centered and to appreciate what i have while it's here. Time waits for noone. God bless you. Anne Marie,

In the moments before I picked up the trib on Sunday I was bithcing and moaning about my financial woes……………i’m glad i read your story. I have to remember to stop being so self centered and to appreciate what i have while it’s here. Time waits for noone. God bless you.

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