I am so grateful to be home. I just had my 2nd night sleep in my own bed (not the uber noisy air/adjustable bed) and without being interrupted at 4:30 am for vital signs being checked; I feel almost human. Hospitals are definitly not the place to get rest. The pain around my new 2nd belly button is down around a 2-3/10, and only bugs me when I sit up, try to speak loudly or cough. I am beginning to get my head wrapped around managing a blow hole in my tummy. Imagine your tummy as a juice box for kids and you’ll get the picture. I am imagining that due to my bountiful bossom I will be able to protect and hide my 8 inch peg tube by taping it near the underwire of my brassiere, instead of letting it hang down to my belly button as I am currently so I can lie on my side for naps and sleep. I would hate to have it get bumped and accidently open up when I’m out in public! On the bright side I have a manually operated tummy flatulence moderator! Just what every gal needs ~ a new way to pass gas, on command.
This surgey feels like a milestone in more ways than one. I fear it is the 1st in a long line of invasive procedures that are meant to prolong life, however they limit the quality of it. I wasn’t clear that this procedure would limit my mobility so much until I spoke to my new Home Health Nurse who informed me if I am to eat with the peg tube it will take me 40 mins per can of formula, w 5 cans perscribed a day that’s 3.5 hours of time spent hooked up to a gravity bag “feeding”. 40 minutes at 5 distinct times a day…That’s alot of time folks! Also – there are NO organic or responsibly produced versions of formula for adults on the market, that I know of at this time- someone call Dr. Mercola! I want a safe raw food based healthy no dairy no soy good for me formula. ( dairy and soy produce too much mucus and this causes difficulty breathing) For a foodie like me having only 1 option is unthinkable! OY.
It’s a good thing I was out for most of my 20’s and 30’s, because I’m definitley IN now! As I look at the last month since our 1st fundraiser, I have spent an inordinate amount of time at home. 1st recovering from said fundraiser, followed by a 48 hour flu/food poisoning bug 2/21-23 then preparing for the scheduled surgery on the 26th…going in for the procedure getting knocked out and then coming home all drugged up…I hung at home having scheduled nothing due to my intended recovery~plus the weather SUCKED.
Then finding out the rescheduled surgery for 3/8 and the last 2 posts tell that saga…so pretty much a homebound month. It’s a good thing I love my home!
I am resting and thoroughly enjoying being a homebody, however I must confess had I known how life with a peg tube would actually look I would have done a round robin Chicago dining adventure to all my favorite spots in the weeks preceding the surgery! I’m going to have to schedule 1-3 diners out a month while the chewing and swallowing is still good. As it is I’ll be packing a 60CC syringe a bottle of water and formula with me wherever I go! Jeez oh peez! I am hoping I’ll get the clear to take baths again after I revisit my surgeon, Dr. Tepper~ who did a beautiful job by the way, according to every other Doc who’s seen it! Soaking in a hot bath has been a ritual of mine for many years and I’d really hate to see it go.
I’m in a bit of a battle for my independence: just in the last month I have needed support cutting my food- veal piccatta to be exact, and after my surgery I did need help with my bath and washing my hair~ Thanks MOM!!! My super fantabulous Home health Nurse Dina noticed that manipulating the “food” or formula delivery system was going to be a challenge for me given the weakness in my hands, if this gets worse I will need in home care MUCH more frequently than the 1-2 times a week I’m getting it now. More like 2 times a day UGH. I am SO not ready for that. I was SCREAMING to be alone after being in the hospital for 3 days, that was the most intrusive/ invasive part of the experience…Not being able to think or write or even sleep when you wished was the most psychologically annoying part, also exhausting I might add! I am unwilling to make like an invalid!
The emotional impact it just hitting Home now, I have installed a device that will gain me more years on the planet, and there is a cost to using it. Right now I don’t dare cry, laugh, cough, talk or eat too much as my stomach will cramp as I’m still sore after the surgery. Hopefully in the near future this device will allow me more freedom not less as I acclimate to using it and allow the new structures we have in place to support me! I am working on being willing to recieve. It’s never been a strong suit of mine and perhaps that’s really what this lesson is about, being willing to recieve and being willing to be cared for. Either way I’m certainly learning there’s no place like HOME.