Kaylan and Tim are documenting their journey with ALS in a series of video clips called the Often Awesome series. They are an adorable fall-in-love-able-with couple who are facing the ravenous progression of Tim’s ALS. http://www.oftenawesome.org and become a fan on Facebook of the Often Awesome The Series page. On their honeymoon to Scotland Kaylan says, “It stuns you everyday.” While my version of ALS isn’t as quick to eat me alive as it is for Tim, I wholeheartedly concur.
I recommend you take a moment and look them up on you tube. Their poignant story is one of the most authentic pieces of video journalism I’ve encountered regarding the experience of ALS. Ben Byer, the producer of Indestructible, an ALS documentary would be proud. In his footsteps they follow.
I am humbled in their presence.