So I used to be a YES to life…all the time! consistently for years…now I pace myself, and things get dropped out. I fail to keep all my promises even in light of scaling back on promises… so with certain communications I run a week to a month late. Please dont take it personally. It’s not personal.

It’s not YOU it’s ME!

Things take longer. What was a 5 minute shower is now 10-15 mins. and I need to rest for 5 minutes after the effort. Getting dressed can now take up to half an hour. Look I know I present a pretty picture, all empowered and involved inspite of ALS. And this is true I am, but I am also clearly focused on certain activities:

1- building a business that will provide for my family and healing my body
2- raising awareness and funds for research
3- expressing myself through writing as much as possible as quickly as possible because i am struggling to type now
4- creating strategic partnerships that will fulfill my vision
5- enjoying good food and drink while I still can
6- staying connected with people

So if I dont email you back or message you back right away it’s not YOU it’s me! I am either resting…recovering from some event or days of working…trying to get it up to be social…or trying to capture what is coming to me and through me that I believe will make a difference.

Here is my request- bug me- email me again. I have so much happening in my brain right now and so many projects I am managing that I need reminders. Chances are that I saw your email while in the midst of something else and couldn’t get to it right away…I may even have forgotten about the email. This doesn’t mean I don’t love you or have forgotten about you. What friendship looks like with me now is you have to generate it more often than not. I know this is a shift, a change and some of you are taking it personally, that I am not as responsive or as receptive to going out or constantly inviting people to do things etc etc. I was out~ now I’m in with the rare exception. I save my energy for events, I manage my rest so I can be sourceful for my clients and I am not operating with the same level of wellness you are despite my best efforts.

Right now I am managing myself to have 2-3 appointments/ meetings/events a day and only doing that 4 days a week. From that small effort I need 3 days a week to recover. On my 3 days off I normally sleep most of the 1st day…I allow myself to rest until I feel restored as much as I can. After a long week such as the gleeful one I just had with my family I will need 2-3 weeks to get back to feeling replenished. I get replenished by getting more rest through out the week and taking 3 sacred days off.

I am extremely productive AND it takes something… thank you for your partnership. It is required for us to move forward.