Posts Tagged ‘Facial muscle twitching’

Ode to my calf muscles

Monday, June 7th, 2010 by annemarie

Dear Calves~ thank you for your service! You’ve always been mighty!
The kind of calves that got me noticed in the gym, and many many requests for ” How did you get those calves?” The answer of course was genetics plus point shoes at 12 years old…I could say the same for my glutes and hamstrings which were also remakable but not quite the stars like my calves were.

I say were, because this week I noticed how different the calves are now – this is a new development just in the last 4 months, my calves are suddenly angular, linear where they were curvaceous. My legs are noticibly weaker, I have begun to fall from time to time. The balance muscles are going~ the anterior and interior ones that keep you upright over uneven ground are leaving me. Just 2 months ago I finally stopped wearing real heels…as in 3-4 inch heels. Much to my doctors distress I had continued to wear them for 3 years after they advised me not to… but it was actually easier to walk in them due to the 1st signs of weakness in my left calf being along the shin bone and responsible for the flexation of my foot, so as my foot drags in flats I was more susceptible to falling in flats. I still look for a shoe with a 1-2 inch rise, because it helps me walk. Thank god the elevated sneakers are in vogue again! Spoken like a true shoe collector I’m clear… I have given away over 100 pair of shoes through out the past year as they became unwearable.

The curve is gone the cut up the middle of the back of my calf is gone, I miss the shapely-ness of it- the-no-matter-how-fat-I-got-I-still-had-great-legs-count-on-ability of it, the stregnth of it~ these are the legs that could squat 425 lbs in my mid 20’s ( which is probably why I have walked under my own power for so long), the extraordinary look of the well formed muscle tapering into the slim ankle…I would have been a hit in the late 1800’s when a well turned ankle was the bombdiggety of attractiveness! It probably says something about our culture that what freaks me out with the most emotional impact is not the reduction in my breathing ( though I wont go swimming again!) it’s the muscle twitching in my face, the screwed up facial expression I get whenever I drink wine, the drooling that becomes increasingly difficult to control, and loss of the muscle groups I could always count on for attractiveness. Forget looking good I’d just like to pass for normal! Which is hard to do when your ass falls off! Yes my formerly righteous bubble butt is gone as well…let’s just say that my nick name in highschool was “buns” and Boom-Boom.

Whats really amazing is how attached we are as human beings to our identity, or to how we have come to know ourselves…I can be as transformed as I want or as philisophicallly grounded as I want AND it does not prevent the IMPACT of the LOSS of who I had known myself to be! How I knew myself to look, and other constructs that became how I got along in the world. I have known that the physical structures in our environment set us up for how we move and manage ourselves but I was always looking at my SURROUNDINGS in regard to that and rarely if ever looking at my interior physical structures…for what they provided in the realm of my mindset or what I felt was possible to achieve, and how I percieved myself in the world. I can see new levels at which I took my body for granted.

Ignorance is bliss has a new meaning…I continually get irritated with strangers who are having superfluous conversations or are gossiping. Really? I think THIS is what people spend the minutes of their life on when they dont have an issue or a challenge or a focus? WTF? For the same reason I don’t watch the news often as I find much of it to be LEGITIMIZED GOSSIP and speculation and rarely any real news. Certainly not positive news, and I guard my optimism with a fierce vigilance. I don’t need the poison thrust on me from some deliberatedly dramatic headline or some ridiculous fluff involving some celebrity gone to hell in a hand basket. I’m not saying having a cause or a purpose is any better, it’s just what makes it all worth while and interesting. After all you know what they say about an unexamined life…definitly NOT worth living.

So I celebrate my calves today, for all that they were for what they still are and for all they will continue to provide! Take a moment and celebrate your own won’t you? Have a love fest with your whole body in fact! Appreciate what you’ve got when you’ve got it. Take care of it and hold it dear, value it and give it rest. You never know when you’ll need those reserves of energy and stregnth.

  • Share/Bookmark

I’m a spectator internally and externally to the progression…

Sunday, January 10th, 2010 by annemarie

It all feels so strange. When I am alone and I’m quiet I almost forget I have ALS. I’m not talking so I’m not reminded, at least that’s how it was until this last month. This Christmas it became difficult to stand up from a squat or get up from a chair. My left leg is fading fast….the majority of the twitching muscle activity had been in the left leg for the past 6 months. my doctor says not everyone feels the twitching 1st, but I sure do…it’s my harbringer of decay.

Last May when I did a rigorous raw food cleanse the twitching stopped for 2.5 whole months….it just went away, then returned when I added caffiene and more cooked foods into my diet again. It returned with a vengence. So next Monday I will begin a raw food regime again and see if it has the same impact. Cutting out caffiene is going to suck but so what!?! If I can delay the twitching perhaps I will extended my time and preserve my stregnth.

I believe I may have taken my last independent trip. Fairwell privacy, fairwell. Things have gotten so damn awkward! I can’t open water bottles and once opened I invariably spill or drop them. In fact the dropsies have become a daily occurance, it used to be occasional however now it’s consistent: I’m always dropping something. I know I should be gratefull that I’m still walking around but for someone who used to spin around in pointe shoes this is a pain in my AAA. For those PALS who were athletes with a high level of kinesthetic awareness, this process is a damn nightmare! As if all your cellular memory was robbed from you one night or better yet blocked- you still have the memory of how to execute a move, step or motion flawlessly but the message is picked up and spirited away before it can hit the muscle that’s just aching to perform. ANNOYING.

My meat is hanging off the bone. It’s as if the connective tissue that binds the muscle to the tendons and bones is missing and the only thing holding that muscle near the bone is the skin. The same with the skin that now hangs from the muscle as though it’s no longer interested in being associated with it. At almost any angle I can feel bone 1st not muscle -I am not skinny and I have alot of muscle. I was strong like bull! I actually think all the weight training I did in college and gradschool is the only reason I have been walking this long. I used to have traps like a man…now my neck muscles are so weak I can’t read laying on my stomach for more than 2-3 minutes at a time. I am constantly concerned about herky jerky cab drivers and possibly injuring my neck in the cab so I push my spine back into the seat to support myself.

I had intended to write for most of the day today, however I rested instead. The tremors had returned to my face while I was in California, nasty little bastards that they are. They were gone for 2 years but now they’re BACK. On my face mind you! My once so pretty face…my mouth is now pulled into a perpetual frown by the twitches on the right side of my smile like a fish hook pulling my lips down toward my jawbone. Then there is the one that feels like a piercing through my left eyebrow creating a V in the browline from time to time. But my favorite has to be the slight mobile tingle from the inside of my left eye socket running over the bridge of my nose and trailing off in my right cheek. Lovely. So I rested today, hoping that it was fatigue from traveling that spurred the facial twinges. So far it eems to be working…I’ll keep you posted.

  • Share/Bookmark