Posts Tagged ‘disability’

Frankly My Dear…

Thursday, July 22nd, 2010 by annemarie

So If I EXPECT compassion from people does that mean I’m being ENTITLED?

I had a conversation with a colleague this week in which he made it clear that he was unwilling to communicate with me the way I currently communicate: which is with a marker and paper when live or via skype, email and text. He’s upset by how difficult it is to communicate with me and is also unwilling to take the time to meet with me in person. Huh. REALLY?

In that moment I experienced being discriminated against by someone who I know loves me and cares for me. While I agree that it’s time for an upgrade in technology to text to speech soft ware etc…that doesn’t fix his main objection of the slowness of the conversation. It’s as if he’s now decided he has no use for communication if I can’t talk in real time. Bear in mind 2 things: 1- he’s been around me quite a bit in the last 2 years so this isn’t a suprise that I’m now barely talking syllables and 2-most of the equipment available to me is too heavy for me to carry around. I found his unyeilding attitude shocking, hurtful and utterly lacking in compassion. If it’s difficult for YOU take a moment and IMAGINE how flipping hard it is for ME. That’s why they call it a DISABILITY. With out ability to perform at a normal level.

I’m sure I’ll get my compassion on for him and how hard it is for him to care for me and watch me diminish…but that might take me a minute.

So if I expect a little compassion from my associates, does it mean I’m entitled? Frankly my dear, I don’t give a damn.

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Last Night I watched the 2009 Ironman and was completely inspired!

Sunday, December 20th, 2009 by annemarie

I was on the couch, nursing an aching leg, having cancelled my plans, due to the lack of mobility…and I turned on the Ironman upon Blazedad’s reccomendation. Robert Blais and his bride are the core of the Blazeman foundation, an organization that raises funds for ALS research in honor of their son Jon Blais, an Ironman and a warrior poet in the war on ALS…check out their site www.waronals.com

I am constantly surprised and delighted by the ability of human beings to adapt and transcend. As I watched the race I moved through many emotions from anger to awe~mostly hanging out around awe. The anger was reserved for myself,as I had been pushing it all week and was paying for it with my painfully sore left leg. I soon forgot about the pain as I watch the Ironman participants young and old, pro and amateur push themselves beyond beyond.

I saw Mike Adamle, a local Chicago sports newsman and former NFL Player who manages his epilepsy, complete the course at age 60. I saw a woman who 2 years ago had a stroke and was told she may not walk again…complete the course. Lee Hollander completed his 20th straight Ironman and I was balling like a baby as I watched Rudy Garcia-Tolson, an accomplished para olympian completely transcend that realm and compete although his legs were removed from just below his pelvis and therefor he propels himself on the bike solely with his glutes…the entire way.

As I saw people endure far more pain in many more places than I was experiencing, it made me feel not so alone. Many people say they are inspired to run to bike and swim for those of us who can’t, but it goes both ways…watching those who can-do it is tremendously thrilling for me as a spectator. It was a great evening!

Rudy Garcia-Tolson made a comment, and I’m paraphrasing here: ” What’s your disability? I’ve got mine, but it’s not stopping me!”
That young man is a walking talking miracle. He really got me thinking…what is your disability?
Is it an attitude? or a story you’ve told yourself for years about how you can’t? shouldn’t couldn’t etc etc- that’s a crippling disability the same as my physical limitations from ALS. Do you have a learning disability or have others told you some limiting belief about yourself? I have come to believe that human beings are endlessly adaptable and innovative. Infact, I believe that some of our best solutions have come from attacking problems in new ways from novel points of view. A distinctive point of view is an ability.

So what is your ability and how will you use it?

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