The Speechless Speech at InRule

Wednesday, September 29th, 2010 by annemarie

This Friday I had the priviledge of presenting a Speechless Speech at a Client conference for InRule Technology,Inc. Paul Hessinger the CEO, had contacted me after the WGN spot aired this summer and set me up as a suprise for his employees and Client guests. The theme of the day was communication, so I dusted off the Speech on Powerful Speaking and Happiness and customized the acknowledgment exercise for his key client services staff. Early in the morning…as luck would have it- a rainy morning and even though I left myself plenty of time …the lack of cab service made me late…I HATE being late, in fact I make a big point of it in my speech ~ about how your credibility is damaged when you are late… Yeah well I was set back on my heels a bit by being late- not late for the speech mind you- just late as to when I had promised to be there 90 mins before. Blech.

However I felt on the inside it apparently had no impact on the presentation, as the feedback was great and again I am certain this format of a Speechless Speech touches something profound in people. They remember what I “said” their reaction is more than it would be if I clearly spoke the same words as I stood before them. I think it has something to do with ” well if she’s not complaining about THAT, then why am I complaining about THIS…” type of comparison. Whatever the hook is I’ll take it! Here’s some of the feedback:

I have to say I was moved by your message, you definitely got my attention. Thank you so much for sharing. I’m going to embrace your tips on not only communication, but on my goals and in what I want to help me further. The only problem for me is that I’m stubborn in my ways so I’ll have to review your advice repeatedly to ingrain it my spontaneous conduct.

Finally, I overheard from some clients that they were similarly affected by your presentation like I was. I’m sure that Friday’s meeting will change the habits and patterns of quite a few people. Thank you again for being a part of our meeting.
Sincerely,
Jeff Enzinger

Afterglow still abounds from your contribution -SO many people were touched, beyond words.
Paul R Hessinger
Chief Executive Officer
InRule Technology, Inc.

Anne Marie,-I very much appreciated your presentation today at InRule’s meeting. Congratulations; you have certainly found your voice. I was transfixed by your words. I wish you all the best. Know that you have touched my life and I am better for it. Thank you. Best regards
John R. Rymer | VP, Principal Analyst
Forrester Research, Inc.

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Thursday night I fell…now I’m standing on shaky ground

Wednesday, September 29th, 2010 by annemarie

I haven’t fallen in over 6 months, mostly due to how I manage my rest and avoid over extending myself. Unfortunately I had a few more appointments than usual this week, including one that I showed up for that didn’t happen…and I was just pissed at myself for not reconfirming ahead of time! And I was feeling a bit overextended. Couple that with a schedule shift on Thursday and a speech early on friday…and I was POOPED after my thurdays massage. So I walked into my home and with in 5 minutes did a faceplant into the carpet! Complete with rug burns on my face, under my left eye. UGH.

I felt my neck crack as I hit the ground …I hit the floor with my right knee and left cheekbone and temple and for the 1st time thought “I wonder if it’s time for life alert?” I had had my phone in my hand so it was near me, and as I did a mental checklist feeling my body from the inside out to see if there was a serious injury…all I can think of is “If I have to go to the emergency room I’m gonna have a helluva time getting up and ready for my speech tomorrow morning”. After I realized I was shaken but not broken, I calmed down and rested on the couch before going to bed early. I put my thoughts and concerns aside to be dealt with after my speech on friday.

As I’ll blog about later the speech went great ( other than being late due to rain and a dirth of cabs at 7:30 am), however my mindset took a nose dive into the abyss over the weekend. I found myself being lethargic and completely stopped regarding my productivity as well as hyper-emotional. I slept a good portion of the weekend and my ability to focus has been disrupted by a concern and mourning the death of my independence. The emotional impact of not feeling safe at home in my sanctuary drained me. “I’ve fallen and I can’t get up…” almost happened to me. BLECH.

It’s time for a shower chair, a further abbreviated schedule and seriously curbing the number of meetings I’m taking. So- I combined a training class with another course in session to free up Mondays again. I’m back to a sacred 3 day weekend. I feel like I’m a yo-yo: one step forward 2 steps back…and pushing myself is getting me no where. I’ve been faking it til I make it all week. It’s time to re group to re-re-re-prioritize. It’s odd to be talking to others about expanding their capacities and structuring their lives to handle more activity while experiencing a shrinking world myself. This constant retreat is a pain in my attitude.

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NAPS! glorious NAPS!

Tuesday, September 21st, 2010 by annemarie

It’s always nice when science gets around to making you right isn’t it? Case in point NAPS. I have been indulging in naps since I left my job in 2006, and I swear by them as an access to productivity. I didn’t know why; it just felt right and I always awoke refreshed and ready to go again after a nap. In fact for the last 3 years I divide my days in half…as if I have 2 mini work days in one. I even timeblock for it…Tuesday mornings are blogging, personal time and chiropractor appt. after I set my assistant up I nap…waking at 3 or 4 and then I’m in “work” mode for a few hours again. Thursdays start with a 7am mtg so I factor in a nap at either 10am or 2pm and split that day up as well.

Now new research tells us why…A quick 70 minute nap is like hitting a refresh button in the brain. According to Matthew Walker,PH.D. at the U of C Berkley Sleep and Neuro Imaging lab: the Hippocampus clears out, short term memories get put into long term vaults. Your Pre Frontal Cortex gets a break so you can power it up again with a bit of glucose and you are on your way! So instead of the best 3 hours of productivity happening only 1 time per day you get it twice! SWEET!

Now -why the hell am I sharing productivity tips in my ALS blog? 1st- it’s what I do. 2nd- when you are dealing with a chronic illness and you have a sense you have stumbled on something useful for humanity it’s very empowering to be vindicated by research and have your intuition proven correct. I’ll take my victories where I can get them! Almost every client I have resists my direction to sleep more…naps are for children is the attitude I get…well perhaps we need to all be more childlike then. There was wisdom in our naps. Benjamin Franklin and Thomas Edison are just 2 of the prolific minds we know of who indulged in naps…I don’t know about you but if I can tap in to that, I’m all over it!

Pushing through/powering through/caffeinating is antiquated thinking. I believe it’s harmful to the body if done consistently. Be good to yourself. Go take a nap!

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Let’s talk about time, baby…

Saturday, September 18th, 2010 by annemarie

People are always asking me about time: Where do you find the time? How do you manage time/ Don’t you get freaked out by time passing? etc etc

Here’s the thing: time management is a missnomer…a lie…no one manages TIME! Time just is. It’s like money, only real and valuable by agreement. It might be a dimension but we all get the same days, hours and minutes. How many is a question mark. So no one actually manages time~we manage ourselves in time. Once you really get that you have got the keys to the kingdom.

I do alot of time blocking…essentially I plan my work and work my plan like a samuri. Every minute of planning saves me 10 minutes in execution, so says te research. I plan for about 2 hrs a week. I block out large periods of uninterruptible time for rest, unplugging and writing or thinking. I treat TV like candy: a treat not to be over indulged in. I manage myself in time to be where I said, to do what I said more often than not.

Basically I don’t worry about time I worry about me. My mindset, my pace, my energy, how long does it take me to do things now that I’m slowing down…do I need assistance? I also manage the conversations I’m in. Language gives life to our world and creates EVERYTHING. It’s mighty and magical. I manage the conversations I have with myself AND those I have with others. All my results and what I produce are a function of me managing my conversations OVER TIME. When I screw up or drop conversations out (with myself and others)~there are no results.

Given my experience of my ALS symptoms I am an impatient woman. NOTHING moves fast enough for me! Instantaneous is slow to me. I have a lot I want to accomplish before I exit stage right! and I’ll probably die trying to get it all out there. So I need every edge I can get. My plan gives me that edge. It helps me not worry about time and it’s inexorable pace, and to remain positively focused on my pace, my mental and emotional space, and managing the whole of myself in TIME. That’s why I called this process the Master Plan. It allows me to ongoingly generate myself as an empowered patient in the face of no treatment, shoddy care, no cure, fatigue, further diminishing capacities…one of my empowering conversations I have with myself is KISS MY ASS IT’S GOING MY WAY! And that includes my view of time.

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Listening to Godot

Saturday, September 18th, 2010 by annemarie

Most of us pay lip service to the concept of our body as a temple in which our soul resides; until we are sick or aging that is…Then we check our reflection and see how accurate and grounded in reality that heavenly phrase really is.

The magnificence of a healthy properly functioning human body is indeed a temple without equal in our physical world. No Cathedral, Synagogue or Mosque; no matter how stunning comes close to our individual house of God. Our “skin Bag” is mistreated, inflated, abused, starved and more often than not poisoned by a mismanaged food supply. Forced growth and chemically altered food like products populate 85% of our grocers shelves…Somehow corn is everywhere: from plastic cups to plasticized foods which are eaten more than the natural vegetable itself.

Somewhere we as a people went off. We forgot God lives here…in us…through us…and our bodies are a work of art, a fitting temple for the divine. An instrument for the expression and expansion of the magnificence of God that each and every one of us is here to be. I had forgotten, but now I remember. I was blind but now I see. It’s the God in me talking to the God in you…PSST! Wake up!

Vote with you fork. NO FAKE FOOD. Honor you body as you would honor your God’s house, from who you share it with to how you fuel it to the products you use…1st do no harm. 2nd use nothing you can’t pronounce. 3rd if you can’t eat it don’t put it on your skin. Use premium fresh local organic food whenever possible. When you are healthy you may not notice that big a difference, I promise you once you deal with a compromised immune system you notice everything from the effect of shampoo to the energy drain of a soda. Why stress your system?

I’m not saying go dip yourself in cherub dust and become a freaking angel overnight! I’m saying get conscious, make more choices that empower your health and wellbeing and mind and spirit.

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Origins of the Master Plan: Part 1

Wednesday, September 15th, 2010 by annemarie

My life was turned upside down in 2006 when I found myself unable to do my job due to my disintegrating speech. I resigned in January and it took 7 months to get my replacement hired so by July I was exhausted, suffering from constant jaw pain and a regular headache that wrapped around my head like Brett Micheal’s bandana. I had built a life around my voice, vitality and myself expression. What was I going to do? How could I make a living? Would I ever feel rested again? I wondered as I slept 18 hours a day for 4 months…and no doctor could tell me what was wrong.

I created the practices that became the Master Plan out of my need to keep myself sane and moving forward in the face of this fatigue, uncertainty, diminishing capacities. I had no marketable skills other than my voice as all the things I was trained in revolved around communication in the moment. I didn’t know what was happening to me though undoubtably something was…I had no job, no insurance ( my cobra payment was more than my rent in downtown Chicago!) no computer skills, and at 40 my boyfriend and I were falling apart. Peachy. It would be 3 years until I was diagnosed with ALS. I was frightened, pissed off, alone and exhausted. Did I mention I was a good 80 lbs over weight? YEAH. Joy.

The only consistent advice I got from physicians was a perscription for anti-depressants, repeatedly 15 times over…while the path to depression was laid out before me, when I looked inside myself what I saw was UPSET and FRUSTRATION not depression. Though I had become prone to crying jags ( what would later be termed a symptom of Emotional Lability) especially when confronting a physician and my own circumstance, I was shocked at how people wouldn’t listen to me about my experience and were quick to label me as “clearly depressed” when that was not my experience at all! Few people could be with the emotions as they rolled through me, often at inopportune times. I steered clear of the meds.

I became more isolated. My life went from interacting with hundreds of people each week to a hand full. I got quiet. I went inside. having been told everything from “You’re just being lazy” about my speech to “It’s all in your head” about my fatigue…I started with 1 thought: IF IT’S TRUE FOR ME THEN IT IS. And I began to listen for my voice, my instincts and what my intuition had to say about my circumstance. Though I can still appreciate the value of looking at things from new/other points of view, I saw I had surrendered my own point of view to a cause and that combined with a penchant for over-giving altruism created an imbalance. I believe that imbalance~ putting the mission of another above myself and my wellness made me sick. I had been concerned with proving my own worth, I had not been responsible for myself. I needed to reconnect. I needed a plan.

Fortunately I am adept at planning, having managed a department with 300+ volunteers…I knew the pitfalls and the problems from over planning and under acting as well as getting discouraged by the miasma of overwhelm that can effect a thorough plan. Especially in the face of that fatigue, I knew I had to keep it simple, doable and encouraging. I needed nourishment, spiritually, mentally, emotionally and physically. I put opportunities to be nourished in my plan. I made my “job” moving something forward in every domain of my life on a weekly basis. I treated every area of life as a department that needed to produce clear results, then I created a “guiding intent” for each area. I worked on keeping my mind clear and focused, so I could step away from the uncertainty of my circumstances, and think about and work on re-creating my life.

As I began to honor myself 1st, things began to move. I made the committment to manage myself differently with an eye on sustainable productivity versus productivity at any cost. I created a physical environment that supported “flow” and effective action versus PRESS. Oddly enough, I began to experienced being fulfilled in the journey~ even though my situation hadn’t changed health wise, people began to reach out to me for coaching and support. As I trained them in the method I had used on myself, the Master Plan was born and refined. I kept reading, researching and implementing the latest from positive psychology and used reliable texts for support: everything from SunTzu to Wallace Wattles to the lastest neurological research.

I believe the Master Plan is so effective because it’s written from the participants point of view. 1st you clear your mind of errant thoughts, 2nd you are nurtured and empowered, then you are naturally in action on what is important to you, and we implement practices that maintain wellness and improve efficiency and expand capacities over 12 weeks. These practices become ingrained as habits as you are trained in planning. You create relationships and environments at work and at home that set you up to win. The results are as astounding for others as they were for me. It is my legacy and I believe my purpose to alter the way people are managed. Sustainable excellence is possible in fact required to move us forward as human beings. We have seen how over work doesn’t work over time…it’s time to manage for the whole person not just results in the short term.

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Learning how to live…

Wednesday, September 15th, 2010 by annemarie

So why is it people with ALS who are out there talking and blogging are so damn inspiring? Many of us have a similar tone, humor and directness about ourselves and our situation. We are a loving if impatient lot, with plenty of material presented by life, the loss of functions and the medical system to fuel our dialogue. I think we are the WAKE UP CALL, it seems people are waiting for something…and what’s wanted and needed is for them to wake up! And take control of their own lives.

So you can learn how to live from those of us who are learning how to die. As you hear us confront the loss of simple pleasures and functions you can more greatly appreciate yours. Do me a favor and today appreciate your necks…give thanks for your neck and it’s stregnth and flexiblility. Today I’m wearing a neckbrace for the 2nd day because my head is too heavy for my neck as I sit at my computer. So be happy about your working thriving neck.

Do my a second favor and unplug from your media swirl today and sit in silence. Do some journaling. Breathe. This isn’t for me this is for you. Most people I see are not present…to anything. They are so wound up in the constant barrage of information and reacting to it they barely register an original opinion. Sit. Breathe. Think. Cry. Smile. Get present to the wondrous amongst the ordinary. Make this a daily practice. Take back your life. Listen to your own voice…ask yourself “What do I want?” And sit there regularly until you hear a clear answer.

Remember the play, Our Town? Emily says,”Do any human beings realize life while they live it? Every minute?”
Narrator: “No.”

Wake up. Pay attention. It’s your time. Savor your life and the details in it. This is really it, you know.

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VIVA Interdependence! Creating a Share the Care Plan

Sunday, September 12th, 2010 by annemarie

Oy vey. One thing I SUCK at. Asking for help and assistance. I’m too little too late most of the time. I got a bad case of the “I think I cans” and the “I’m fine on my owns” and all that ain’t neccessarliy so…

The truth is it’s time. I need help with some things: opening bottles and containers everything from hot chocolate packets to bottles of juice. I now need help filing and cleaning my nails. Dressing in many of my clothes has become a joint project, forget making the bed and opening the mail! I’m all about delegating that. So I’m thinking of having someone come in for 30 mins to an hour a day to handle all that jazz and call in a carryout order for fresh pressed veggie juice as I’m not even pretending to use my juicer anymore. Maybe we can throw some physical therapy in there while we are at it? We’ll see.

At my Doctor’s appointment It became clear my thumbs are aching from tendonitis because I’m trying to do more than the muscle can handle~ I’ve already begun to switch over to thinner lighter bath towels I guess I need to buy more. My house keeper comes 1/wk and my assistant graciously helps pick up things and do light cleaning before we meet, but I think it’s time to give up on “I think I can” and embrace being interdependent. Maybe even consider enjoying it…maybe.

I am loathe to give up my privacy and the solitude of my home. The idea of having an appointment everyday to handle mudane chores exhausts me…perhaps we’ll begin with 3 times a week. I think I need to ease into this as helpful as it maybe…I’m having a hard time letting go of my independence…apparently I’m a bit attached. I think I have it confused with or collapsed with invalid…in-valid…as in not capable or valid as a human being. Since this makes me cry I’m sure that’s the heart of it. I can see I’ve been dreading this day, making it mean something it doesnot mean. Afterall it’s not personal, it’s just what’s wanted and needed to maintain a particular standard of living. I have given my parents the homework of reading Share the Care : How to organize a Group to care for someone that is Seriously Ill, by Cappy Capossela and Shiela Warnock. I however have avoided getting to far into it.

I know people want to contribute and I need to let them. It will enrich them and me…just gimme a minute.

Viva Interdependence!

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Bound by a paradigm

Sunday, September 12th, 2010 by annemarie

So my visit to UIC ALS clinic was decidedly different in tone from my former hospital though I still felt bound by our current medical systems paradigm in the creation of my care. First off I was welcomed and treated like a person versus a number, which was new. Given it was my first visit I still had to meet with everyone under the sun, which was completely exhausting…Note to self: request a 20 minute nap in the room when tired and bring snacks as well as a typed agenda for the DR. However, I did feel that people were respectful of my time AND they had the courtesy to introduce themselves and say who they were and why they were there. Interestingly, as a consequence I had none of the Dr visit hangover I normally experience. While I still needed to recover physically, it wasn’t like I had to reclaim my mind from the grips of a black hole of NO POSSIBILITY. I didnot feel like I had spent the day as a dead woman walking.

There was a minimum of repeat testing done through out the visit~ one of my chief complaints re my visits to Northwestern is that 2-4 doctors ( always one I’d never seen before…) would come in and perform the same basic neurological/reflex exam repeatedly – I felt like I was a guinea pig for any new resident or physician~ whom invariably would waltz in with attitude and without introduction and ask the same old questions that would be repeated again for the physician accountable 20 minutes later. It’s the attitude that makes a difference and the request of my participation versus ASSUMING I’d be fine with being poked and prodded by a newbie and stranger for the benefit of their training.

I’m not your toy. Don’t waste my fucking time. There I said it. Thank you to UIC for having the sense NOT to do this to people!

I still have my reservations regarding my care in general however I believe it’s a function of the limited paradigm our medical system is stuck in rather than a weakness of the people involved. From my perspective, I am studying people who have lived 10-15 years or longer with ALS…and I’m going to do whatever the hell they are doing. I don’t give a shit if there is medical evidence or research yet done to varify the treatment modalities they advocate; their pathway is the only pathway out there…I dont have the time to wait and if it’s not uber invasive why not try it? Given that Western medicine has no treatment from their own system to offer ~then work with me to get me what I need to do so in the safest way possible. I didn’t need the recent study about massages to know they are beneficial…I get them anyway. What I want is a partner to help me coordinate my care…a team of Doctor, Natropath, Massage, healers, Detox masters etc…with someone to work with me to make sure I’m not contradicting myself in the process. You don’t have to agree with me just listen and guide and be of service and let me know if I’m at risk of poisoning myself.

I have this vision of an inclusive facility, an integrative treatment center where all possibilities are honored and coordinated to serve the needs of the patient. Nirvana perhaps but completely doable.

I am clear my physicians are bound by their western paradigm…they cannot honor different requests I have – which seem completely logical to me…HGH for muscle regeneration for example…there’s even a study being done on it, but because it’s not yet tested it isn’t permitted to be tried. TRY ME! Or make an effort to get me to where it can be tried. Which at least the folks at UIC seem willing to do regarding the pacemaker for the diaphram for example. This is an encouraging sign and an opening for a dialogue at least. MORE DIALOGUE PLEASE. My only complaint about my appointment is that I was so exhausted by the time I met with the Physician, I didn’t have the energy for a meaningful dialogue to create my care with her…I would have liked to meet with her 1st and then everyone else. Waiting til next appointment to do so just isn’t acceptable so an email is on it’s way. Look I know I’m a unique patient, and as an executive coach If I ever tried to tell them what to do before listening to what they want…I’d be fired. Appropriately so. I think a consultation and a bit of time listening is a good idea before you do anything…

“You can only make a difference to the extent that you are related.” Werner Erhard

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R.I.P. Cecelia Helen Schlekeway

Wednesday, September 8th, 2010 by annemarie

My last surviving grandparent passed away after a BIG life Monday nite. Celia was near her 99th Birthday in Lake City, South Dakota. She drove until she was 96. She had 12 children ~ 10 of whom survived her: 9 boys and 1 girl. She came from a family of Pioneers, literally…born on November 12, 1911; her family like my grandfather’s were 1st generation Americans having emigrated from Austria/Hungary in the late 1800’s. As they learned English they learned Lakota because that’s what their neighbors spoke. Imagine all she has seen in her lifetime.

She has 24 grand children and they have a big ole passel of kids themselves that I cant get my hands around to count right now. She hated my tatoo’s but loved my attitude. Especially that time I got her neighbor at the lake to clean up their mess they left on our lakefront lot of old house parts, that was ruining her view. Most of her children and grandchildren have gone into teaching and coaching as a career path. So her influence is felt by tens of thousands of students across the country.

Celia knew how to put you to work when you came to visit and kept herself busy with a huge garden and honey bees and playing canasta with the ladies on their beloved Clear Lake. She was the last of her friends to stop driving and had been the one to gather them together to get their hair fixed in town once a week. She followed the Vikings for football and the Twins for baseball religeously and dished out smack to opponents with the best of them!

I hope to be half the woman she was and live just as long.
Thank you for giving us your heart Grandma and for every loaf of zuchini bread and poppy seed bread you ever baked!
I love you.

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