Archive for the ‘Event Info’ Category

Nov 19th Networking for a Cause!!

Friday, October 29th, 2010 by annemarie

Join us and Make a Difference~ Nov 19th event benefits Augie’s Quest for ALS Research

Please join me and the staff at Master Plan Programs for a networking event and a Speechless Speech to be remembered on Being Extraordinary in Challenging times! Drinks and apps are included; November 19th at Witt’s 2913 North Lincoln Ave, Chicago
5:30-7:30pm
$35 in advance, $40 at the door
Register online at www.kissmyals.com under events
All proceeds benefit ALS research efforts

I launched my executive coaching firm well after the onset of symptoms and we now produce programs in Chicago and L.A. So I know a bit about being extraordinary in the face of severe setbacks and challenges. Though I am no longer able to speak, I have developed a presentation style known as the Speechless Speech which gives my words a silent voice and immediate impact. I invite you to join us for an evening that will make a real difference.

I promise it will be more valuable for you than the price of admission!

This event is sponsored by my company Master Plan Programs, and Witt’s Tavern and it benefits the MDA’s Augie’s Quest campaign to cure ALS. 70 years after Lou Gherig developed ALS there is no treatment and no cure. ALS is 90% spontaneous and can happen to anyone. There are 33,000 people at any given time with ALS in the USA. Life expectancy is 3-5 years after diagnosis. So the 6000 new people diagnosed each year basically replace those who have left us. I am committed to end ALS in MY LIFETIME!

This event will be inspiring, informative and rich with ideas to make the most out of life! I look forward to seeing you there!

Please share this post…
Anne Marie

  • Share/Bookmark

Simple fundraisers you can do in any community

Wednesday, April 21st, 2010 by annemarie

It’s interesting how some subjects come up repeatedly in a short period of time. Recently people have been asking for fundraising ideas or commenting about how they want to have a cool fundraiser where they are. So here’s a few ideas you can do with a few friends or a small gathering or blow it out with a big crowd if you’ve got the resources and the space!

Home Parties:
Have an Art Swap. Invite your friends to bring art that they are not using or are tired of and do a swap. Have each person donate $20 or paying what the item is worth into a pot which gets donated to the cause of your choice.

Have a paperback book exchange, or a real book exchange. Donating what you would have paid for the new books to your cause.

A clothing and or jewelry exchange: donate half the retail value…that way everyone gets a deal!

Find out which friends have your shoe size and do the same deal!

Or if you don’t want to deal with “stuff” Just have your friends over for a potluck or a wine tasting ( everyone brings a bottle ) and then donate what you would have spent on a dinner out or a night out at the club/pub/joint. Include the tip.

With all the above I would have a conversation regarding the charity you have chosen and or the facts and FAQ’s re the disease or illness you are out to impact. Try to find out facts about the charity such as what’s the % of each dollar that goes to research or patient services etc. Be informed. Have a conversation to inform your guests. Mail out your invitations: 1st of all it’s nice to get an invite in the mail and 2ndly people who can’t attend may chose to donate anyway. Invite them to do so.

My hairdresser Rochelle has been doing “hair days” out of her salon for various causes important to her clients. She’ll get coloured hair extentions donated and put them in for girls and moms during the fundraiser for 10-20 bucks a pop. She has also organized groups of hairdressers to donate 3-5 hours and done weekends of hair cuts, shampoo and blow dries etc…with all the proceeds going to a cause.

Have a garage sale. Have a neighborhood garage sale and donate the proceeds.

There is a reason Big events are annual. They take alot of energy and effort to gather a crowd big enough to raise enough dollars to cover the costs and be worth it for the charity. If it weren’t for an anonymous donor of 20k at my event I would have considered it a failure given the energy and effort that event took from me. This is one of the reasons I am an advocate for A Midwinter Nights Dream, it’s a far better use of me as a resource to facilitate 20 or more of these chapters around the country, that it is to have me throw 20 parties.

So whether you are raising money for a walk, run, ironman, or a research institute: Get creative ~ enroll a team and start a conversation for making a difference. Ten people having a house party that raises 500 bucks is a sizeable donation, have a contest who can raise the most gets a prize!

Happy Fundraising!

  • Share/Bookmark

Upates and Announcements

Saturday, April 17th, 2010 by annemarie

Hi All~
This is a bit of a different post as there are several things to communicate and I’ve been fairly silent since easter weekend.

1) Whenever I get off my schedule- which looks like 2.5 days of quiet and being “off” per week I get all exhausted and screwy. It throws me for a loop and I drop out writings and my focus goes towards getting through the days. Just yesterday I had to have my assistant drive me home and cut our meeting short as I began crying because of my frustration in communicating what I wanted to her; ALL ME not HER. Damn Emotional Lability! It just goes to show you that when you compromise on your promises to yourself NOTHING good comes of it.

2) I am looking for an intern who will take on managing the events page of this site such that it can be a comprehensive listing of ALS related events from around the country. This would include researching and posting the events on the calendar and working directly with me to manage that content and communication with those causing the events.

3) I’ve had several requests for sponsorship of this site recently and we are working on a program – all proceeds from this will go towards underwriting our fundraisers and directly to ALS research in a 50/50 split. I’d like to focus on industries that would directly be of service to my audience: those that support PALS and their families as well as have a section for folks who want to support what we’re up to with their businesses. We’ll start with packages as low as 100/m with a 6 month minimum. And we’ll have a non compete with in your industry: ie, if you’re a printer you’ll be the ONLY printer. Please contact me through this site if you are interested.

4) I will do a full post about this however I am an ambassador for A midwinter Night’s Dream and that means I have a promise to them to facilitate 20 new chapters around the country by next September. I am looking for introductions to high school teachers in all areas of the US. If they have been impacted by ALS that works and if they just want a cool program to inspire and train their students in business and event planning that works too! AMND will support each chapter to be successful and given their track record of raising 1.5 million in 6 years from 1 New York High School, I believe they have a handle on this.
I have decided I can reach more people by facilitating them than I can on my own, though I will keep having Kiss My ALS events and initiatives. Right now expanding AMND is my initiative.

5) RE: the Debacle surrounding my surgery at Northwestern hospital I have not yet completed my letter to the president and will do so in the coming week. I find that I am still upset about it and it’s interfering with my ability to be effective in that endeavor. 1 month after surgery I am still down 14 lbs, and haven’t been able to gain any back. Given the difficulty I now have in speaking~ it’s like the procedure took my breath away and diminished my already impaired speech to 1/2 of what it was over night, I am not a fan of the early placement of the peg tube. I wasn’t informed of the consequences of the procedure – no one told me it would do this to my ability to communicate and it’s been a devastating loss. Had I known this was a possible result I would have waited at least 6 months if not a year and planned my activity accordingly. It’s as if they think you don’t have a life to live when you have ALS. RIDICULOUS.

6) We are having a meeting on Sunday 4/18 to plan several new events for Kiss My ALS. On the Agenda we have:
-ARtists for ALS event in late summer
-Hair style days and RED hair extentions coordinating with the artists event
-An expanded Pub Drive for 1/15-2/13/2011 with new beer and liquor sponsorships and prizes
-A spin a thon
If you are interested in participating in any way please let me know!

  • Share/Bookmark

Up coming Events that support the ALS Community

Friday, March 19th, 2010 by annemarie

Here are 2 great opportunities to make a difference for people with ALS and for you to know yourself as a CONTRIBUTION!

First, my friend and partner in the cause Sarah Madden, who’s family has been directly impacted by ALS, and is also the all-star Executive Director of the Chicago MDA Is hosting the 4th Annual “A Toast to Life” benefit
W H E N :
Saturday, April 24, 2010
6:00 PM –10:00 PM

W H E R E :
Park West
322 W. Armitage Avenue
Chicago, Illinois
(Mapquest Park West |
Park West Website)

C O S T :
$95 in advance (Purchase)
$115 at the door

Tickets are now on sale for our 4th Annual “A Toast to Life” to benefit ALS research! Ask me or go to www.mdatoasttolife.com for more details!
Sarah Madden
Executive Director
Chicago MDA
430 N. Michigan Avenue, #603
Chicago, IL 60611
312-254-0632
smadden@mdausa.org
www.mda.org

And the passionate staff and students at Beth Preis”s District 30 Maple School in Northbrook, IL is hosting it’s 10th annual event!

10th Annual Lew Blond Memorial 5K Run/Walk, 1 Mile Run is May 22

This year marks the tenth year since the Lew Blond Memorial 5K Run/Walk, 1 Mile Run as been in existence. It will be held at 8:00 a.m., Saturday, May 22, 2010 at Maple School, 2370 Shermer Road, Northbrook, IL. The 1 Mile Run will be held at 9:15 a.m. This fun family event draws an average of 750 participants annually from all over the Midwest. The Lew Blond Memorial 5K Run/Walk is held in honor of Lew Blond, a beloved Maple School teacher who passed away from Lou Gehrig’s Disease (ALS) in 2000. He was an exceptional and dedicated teacher of the applied arts and was revered and cherished by his students, colleagues and parents of the children he served.

Proceeds from this event have continually benefited research through the Les Turner ALS (Lou Gehrig’s Disease) Foundation, have provided 18 scholarships for former Maple School students intending to pursue careers in education following graduation from Glenbrook North and Glenbrook South High Schools, and have supported many District 30 projects at Maple, Wescott and Willowbrook Schools. This is a CARA registered race. For more information, go to www.district30.org, and click on the Lew Blond Run link, under Administration. Sign up for the race now at www.signmeup.com/67640.

I apologize ahead of time for not knowing how to post the links directly! Please make the extra effort to participate!

  • Share/Bookmark